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Amplifying Data for Evidence and Learning (ADEL) Service Desk
Welcome! The Amplifying Data for Evidence and Learning (ADEL) Service Desk is for requests related to data contributions and user support for the Alzheimer’s Disease Knowledge Portal, Exceptional Longevity Knowledge Portal, ALS Knowledge Portal, and the CLASSIC Portal + OpenDRaWeR Metadata Catalog.
You can raise a support request with the Sage Data Coordination Center (DCC) for your Program by opening an issue here.
Note that there is no coverage provided on weekends, evenings, and holidays.
Data Sharing Support Add Data to a New Study, Add Data to an Existing Study, Add Analytical Outputs, Community Data Contribution Program, Request a DOI for Publication.
General Support Report a bug, Suggest an improvement, or Ask other questions.
Data Sharing Support
Community Data Contribution Program
Use this request type if you want to contribute data to one of the Knowledge Portals through the Community Data Contribution Program (CDCP).
Required fields are marked with an asterisk*
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"}]},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":73},"layout":"default","localId":"2393338f-32a8-427e-ba88-0c6f78784fd3"}}]},{"version":1,"type":"doc","content":[{"type":"heading","attrs":{"level":1,"localId":"c41468c6-879c-4565-8843-4d5791ddc615"},"content":[{"type":"text","text":"Attestations for meeting ADKP CDCP Requirements","marks":[{"type":"textColor","attrs":{"color":"#403294"}}]}]},{"type":"paragraph","attrs":{"localId":"94d46f24-586b-44bf-aba3-0e3c5afde569"},"content":[{"type":"text","text":"The AD Knowledge Portal has a "},{"type":"text","text":"Community Data Contribution Program (CDCP)","marks":[{"type":"strong"}]},{"type":"text","text":", which provides a means for sharing data and other resources not directly funded through the Accelerating Medicines Partnership (AMP-AD) Target Discovery Program or the AMP-AD Affiliated Consortia supported by the National Institute on Aging (NIA)."}]},{"type":"paragraph","attrs":{"localId":"cc49839e-5643-422e-a5b1-b42564a1cc40"},"content":[{"type":"text","text":"This is a fee-for-service program. ","marks":[{"type":"strong"}]},{"type":"text","text":"We will provide a detailed quote for your prospective contribution based on the complexity of your project and the volume of data being contributed. In addition to a quote, we can also provide you with a Data Management Sharing Plan template which specifically discusses the AD Knowledge Portal and a Letter of Support to include in your grant proposal, if applicable."}]},{"type":"paragraph","attrs":{"localId":"6e78bb15-acb2-4007-bc4f-437ab33dfbf0"},"content":[{"type":"text","text":"A Community Data Contribution Program (CDCP) quote includes the following:","marks":[{"type":"strong"}]}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","attrs":{"localId":"f0d24ee2-a19d-4b83-b7e8-8d09519e7006"},"content":[{"type":"text","text":"Secure data storage in the cloud. Storage costs are free while sponsored by NIA."}]}]},{"type":"listItem","content":[{"type":"paragraph","attrs":{"localId":"64ebbeff-0b7c-48b4-a8e7-d0a5c5769321"},"content":[{"type":"text","text":"Consultation with our governance team: This includes establishment of required data sharing or transfer agreements with the data contributor(s) and selection of the data sharing model (open vs. controlled)."}]}]},{"type":"listItem","content":[{"type":"paragraph","attrs":{"localId":"5f519a03-3bbf-4d95-88d3-8ab755136b00"},"content":[{"type":"text","text":"Consultation with our data curation team: This includes setting up your project infrastructure in Synapse, coordination of data uploads, updates to the data model, and final validation before release through the AD Knowledge Portal."}]}]},{"type":"listItem","content":[{"type":"paragraph","attrs":{"localId":"3b826129-2328-4007-992b-3f5a992048a9"},"content":[{"type":"text","text":"Help desk support through the duration of the original grant period."}]}]}]},{"type":"paragraph","attrs":{"localId":"a446f0aa-6ed0-43ce-8d60-fbf0021a845d"},"content":[{"type":"text","text":"Note that all CDCP data must be made available for general research use under the terms of the AD Knowledge Portal Data Use Certificate, with no publication embargo or requirement for collaboration. Additionally, data must be provided with associated metadata, study, and methods documentation. A Data Transfer and/or Data Sharing Agreement will be required before upload."}]},{"type":"paragraph","attrs":{"localId":"b3aa7546-8348-44ec-aab1-fcde8f9088ea"},"content":[{"type":"text","text":"If you would like to proceed with a quote for data sharing through the AD Knowledge Portal, please answer the following questions","marks":[{"type":"strong"}]}]},{"type":"paragraph","attrs":{"localId":"7c033b77-197d-4b60-b52b-4c44df56d5e0"},"content":[{"type":"text","text":"This information is also available via the AD Knowledge Docs here: "},{"type":"inlineCard","attrs":{"url":"https://adknowledgeportal.synapse.org/Contribute"}},{"type":"text","text":" "}]},{"type":"paragraph","attrs":{"localId":"0a59b640-da6c-4812-8d7f-814a8e01a9d7"},"content":[{"type":"text","text":"Help Docs:","marks":[{"type":"strong"},{"type":"textColor","attrs":{"color":"#bf2600"}}]},{"type":"text","text":" There is additional information on the AD Portal Docs to help guide you as you complete this form. 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