Amplifying Data for Evidence and Learning (ADEL) Service Desk

A short name/title/summary for this ticket

What is the name of the program this data is associated with? Programs can be found under the Explore section on each Portal website.

What is the name of the project this data is associated with? Projects can be found under the Explore section on each Portal website.

Studies can be found under the Explore section on each portal.

Please enter the grant number associated with this data contribution.

Please enter the name of the originating funding source.

What is the name of the principal investigator?

What is the institution of the lead PI?

What is the data liaison's name and email? This person will be the main contact with the Sage DCC.

What is the name and email of the data uploader? This person is responsible for assembling the required metadata and uploading the data and metadata to Synapse, and therefore, they must be familiar with with R, Python, or the Command Line in order to use the Synapse API clients.

What are the Synapse username(s) of the data uploader(s)?

A data index is used when the data is publicly and permanently hosted elsewhere through an already established link. All data contribution steps will be completed EXCEPT uploading the data to Synapse. We will instead point to the data from the AD or ELITE portal and use our metadata templates to provide data discoverability.

Do the individuals in this study have data shared in another repository, such as NACC, ADNI, NIAGADS, LONI, etc.)?

If Yes to Human Data, please answer this question.

Select the data types that will be provided for this study.

If a data type is not provided, please provide the name of the data type(s).

What are the estimated number of individuals and/or samples included in this study?

What is the estimated number of files you will upload to Synapse?

What is the expected file size you plan to upload to Synapse?

What is the expected files types you plan to upload to Synapse?

What is the expected processing levels for the files you plan to upload to Synpase?

Please provide any additional information concerning the data that the DCC team needs to be aware of.

Describe the cohort or model system the data has, or will be, generated from. Include study type (randomized controlled study, prospective observational study, case-control study, or post-mortem study), disease focus, diagnostic criteria and inclusion/exclusion criteria of study participants. For post mortem studies include the tissue bank name(s). Include species, treatments, (if genetically modified) genotype and genetic background. Provide a link to the strain datasheet(s) if a commercial model, or a description of how it was created if not.Include species, cell type, cell culture information (such as primary or immortalized cell line, passage, treatments, differentiation). If a commercial cell line, provide a link. For iPSCs and organoids, include the following: Details of the reprogramming protocol, including transcription factors or transgenes, any commercial kits used, and any cell quality control checks for pluripotency, genomic integrity, or other markers Details of the differentiation protocol, including any intermediate cell types (i.e., NPCs or NSCs), growth factors, induction transgenes, culture media (specify feeder-dependent or feeder-free), plate coating or matrix Any additional treatments or genetic alterations Note: reprogramming, differentiation, and culture protocols may be provided as additional documents with your data submission.

For each assay, or assessment, provide a summary of sample processing, data generation, and data processing, including which organs and tissues the samples came from. For other tests (such as cognitive assessments or imaging), include a description of how the test was done. Include links to any commercial equipment or tools, or code repositories. Detailed protocols are highly recommended. These can be uploaded as pdf together with the data-files, or as links to protocol repositories such as protocols.io or Open Lab Book. (link to additional information in the text, or add a list of references)

Start with this sentence: "The results published here are in whole or in part based on data obtained from the [e.g.,ELITE or AD Knowledge] Portal (url of portal)." Then, add a paragraph acknowledging grants and/or people of your choice. Include any citations.

A publication dataset uses Synapse Datasets to group content already hosted in the Portal, and links that Dataset to a Data Availability section in a manuscript through a persistent identifier (DOI). The DCC needs a minimum of two weeks notice to create a publication DOI.