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Researcher access to Participant Data
Periodically, bulk exports of deidentified study data are produced by Bridge server for each study, and posted on Sage's data sharing platform, Synapse.
Revoking / Resuming Data Sharing
The server provides API calls allowing the user the ability to suspend or resume sharing data with investigators. Suspending data sharing does not disable the account, but it does block user data sharing meansfrom being included in any future data set exported from the study. Participants may continue to use the app, and resume data sharing at a later date.
An administrative-only API call can be made by Bridge technical admins to permanently delete a users account and all associated data from Bridge server if requested by a user.
Note, even after a Bridge account has been deleted, it is not possible to pull back data already distributed to researchers. This fact is explained to users during the informed consent process which much be completed to enroll.