Atlassian uses cookies to improve your browsing experience, perform analytics and research, and conduct advertising. Accept all cookies to indicate that you agree to our use of cookies on your device. Atlassian cookies and tracking notice, (opens new window)
{"xsrfToken":"8c2fd7c8f5fc8e97e5d52a0de918f303b3b0e84f_lout","branding":{"id":"8","key":"act","name":"Access & Compliance Team (ACT)","portalBaseUrl":"/servicedesk/customer/portal/8"},"helpCenterBranding":{"logoUrl":"https://api.media.atlassian.com/file/09392171-04f3-4a46-b595-dbde5f429be1/image/cdn?token=eyJhbGciOiJIUzI1NiJ9.eyJpc3MiOiI2MzNhMzIzMC1mNzYxLTQ2YjEtYWI5Ny1jMmQ3OTY1MDYzNmMiLCJhY2Nlc3MiOnsidXJuOmZpbGVzdG9yZTpmaWxlOjA5MzkyMTcxLTA0ZjMtNGE0Ni1iNTk1LWRiZGU1ZjQyOWJlMSI6WyJyZWFkIl19LCJleHAiOjE3NzExMzUwMzYsIm5iZiI6MTc3MTEzNDQzNn0.FDAeFAx8eYZGqL6V-qdblQ4Bzb1Eqb3652QtWyZa5Lg&client=633a3230-f761-46b1-ab97-c2d79650636c&mode=fit","logoId":"09392171-04f3-4a46-b595-dbde5f429be1","isLogoAvailable":true,"helpCenterTitle":"Welcome to the Help Center","sharedPortalName":"Sage Bionetworks Help Center","userInitialAnnouncementHeader":"","userInitialAnnouncementMessageWiki":"","translations":{"en-US":{"helpCenterTitle":"Welcome to the Help Center","sharedPortalName":"Sage Bionetworks Help Center","localeDisplayName":"English (United States)"}},"canEditAnnouncement":false,"siteDefaultLanguageTag":"en-US","userLanguageTag":"en-US","portalThemeColor":"#1a7dbb","helpCenterTitleColor":"#ffffff","bannerMediaApiUrl":"https://api.media.atlassian.com/file/94ae2c2d-c05c-4595-a455-aa8cd622181e/image/cdn?token=eyJhbGciOiJIUzI1NiJ9.eyJpc3MiOiI2MzNhMzIzMC1mNzYxLTQ2YjEtYWI5Ny1jMmQ3OTY1MDYzNmMiLCJhY2Nlc3MiOnsidXJuOmZpbGVzdG9yZTpmaWxlOjk0YWUyYzJkLWMwNWMtNDU5NS1hNDU1LWFhOGNkNjIyMTgxZSI6WyJyZWFkIl19LCJleHAiOjE3NzExMzUwMzYsIm5iZiI6MTc3MTEzNDQzNn0.MjgW53CPK_iJuXoJY5jzQnzCTWhSdLWU6RDt3PEpZnc&client=633a3230-f761-46b1-ab97-c2d79650636c&height=300&mode=fit","bannerMediaApiFileId":"94ae2c2d-c05c-4595-a455-aa8cd622181e","useDefaultBanner":false,"isBannerAvailable":true,"hasTopBarBeenSplit":false},"portal":{"id":"8","key":"act","projectId":12169,"serviceDeskId":8,"name":"Access & Compliance Team (ACT)","description":"<p>Write to us if you have questions or concerns about data access. Please report potential data violations &/or security incidents to <a href=\"https://sagebionetworks.jira.com/servicedesk/customer/portal/20/group/30/create/194\" class=\"external-link\" rel=\"nofollow noreferrer\" target=\"_blank\">https://sagebionetworks.jira.com/servicedesk/customer/portal/20/group/30/create/194</a>.</p>","portalBaseUrl":"/servicedesk/customer/portal/8","reqTypes":[{"id":"557","name":"Anonymous Account for Journal Review Request","descriptionHtml":"<p>Use this form to request Sage Bionetworks to send your journal editor accounts to anonymously review data hosted on Synapse.</p>","callToAction":"Anonymous Account for Journal Review Request","introHtml":"<p>Use this form to request Sage Bionetworks to send your journal editor accounts to anonymously review data hosted on Synapse.</p>","icon":12616,"iconUrl":"https://sagebionetworks.jira.com/rest/servicedeskapi/requesttype/icon/type/SD_REQTYPE/id/12616","groups":[15],"key":""},{"id":"134","name":"Condition for Use","descriptionHtml":"<p>If you clicked on the button “Add Conditions for Use” in Synapse, a temporary lock was placed on your data folder or file so that sensitive data cannot be downloaded. <b>If you don’t need Conditions for Use, please let us know by messaging us below and the lock will be removed.</b> Please note that Synapse Terms of Service require that your open access data is properly de-identified (must meet HIPAA safe harbor de-identification).</p>\n<p>If you’re already a member of a Sage administered Data Coordinating Center (DCC) or Self-Managed Plan, please let us know and we’ll route your request appropriately.</p>\n<p>To proceed with adding Conditions for Use, you can upgrade to a Self-Managed (paid) Plan (<a href=\"https://www.synapse.org/Plans:default\" class=\"external-link\" rel=\"nofollow noreferrer\" target=\"_blank\">https://www.synapse.org/Plans:default</a>) which includes Governance consulting and additional project support. Our Governance team will assist in setting up tools for you to manage data access requests.</p>\n<p>If you are interested in alternative access control methods, please review Synapse documentation describing sharing settings. We would need to remove the lock before you are able to proceed with using sharing settings - please let us know if the lock should be removed.</p>","callToAction":"Condition for Use","introHtml":"<p>Click here to learn more about adding Conditions for Use to your data</p>","icon":12640,"iconUrl":"https://sagebionetworks.jira.com/rest/servicedeskapi/requesttype/icon/type/SD_REQTYPE/id/12640","groups":[15],"key":""},{"id":"491","name":"Data Access Issue","descriptionHtml":"<p>In the Description, include:</p>\n<ul class=\"alternate\" type=\"square\">\n <li>Your Name</li>\n <li>Your Synapse Username</li>\n <li>Name of the Portal/Project/Study you wish to access</li>\n <li>SynIDs of the data you wish to access</li>\n</ul>","callToAction":"Data Access Issue","introHtml":"<p>Use this request type if you are having trouble accessing data in Synapse.</p>","icon":12733,"iconUrl":"https://sagebionetworks.jira.com/rest/servicedeskapi/requesttype/icon/type/SD_REQTYPE/id/12733","groups":[15],"key":""},{"id":"79","name":"General Questions","descriptionHtml":"<p>Please include:</p>\n<ul class=\"alternate\" type=\"square\">\n <li>Your Name</li>\n <li>Your Synapse Username</li>\n <li>Any project/folder/file SynIDs you are inquiring about</li>\n</ul>","callToAction":"General Questions","introHtml":"<p>Don't see what you're looking for? Select this option and we'll help you out.</p>","icon":12769,"iconUrl":"https://sagebionetworks.jira.com/rest/servicedeskapi/requesttype/icon/type/SD_REQTYPE/id/12769","groups":[15],"key":""},{"id":"260","name":"GENIE Access Request","descriptionHtml":"","callToAction":"GENIE Access Request","introHtml":"","icon":12645,"iconUrl":"https://sagebionetworks.jira.com/rest/servicedeskapi/requesttype/icon/type/SD_REQTYPE/id/12645","groups":[15],"key":""},{"id":"143","name":"Anonymous Access Data ","descriptionHtml":"","callToAction":"Anonymous Access Data ","introHtml":"<p>Click here to explore whether Synapse can support making your data publicly available (i.e., anonymous access)</p>","icon":12637,"iconUrl":"https://sagebionetworks.jira.com/rest/servicedeskapi/requesttype/icon/type/SD_REQTYPE/id/12637","groups":[],"key":""},{"id":"163","name":"ELITE Data Access Requests","descriptionHtml":"","callToAction":"ELITE Data Access Requests","introHtml":"","icon":12602,"iconUrl":"https://sagebionetworks.jira.com/rest/servicedeskapi/requesttype/icon/type/SD_REQTYPE/id/12602","groups":[],"key":""},{"id":"80","name":"Emailed request","descriptionHtml":"","callToAction":"Emailed request","introHtml":"<p>Request received from your email support channel.</p>","icon":12747,"iconUrl":"https://sagebionetworks.jira.com/rest/servicedeskapi/requesttype/icon/type/SD_REQTYPE/id/12747","groups":[],"key":""}],"reqGroups":[{"id":15,"name":"General"}],"orderMapping":{"15":[491,557,134,260,79]},"kbs":{"kbEnabled":true,"kbLink":{"appLinkId":"a3b8e349-e434-3cd6-99b4-fcec3e545028","appLinkName":"System Confluence","appLinkUrl":"https://sagebionetworks.jira.com/wiki","spaceKey":"ACT","spaceName":"Access & Compliance Team","spaceUrl":"https://sagebionetworks.jira.com/wiki/spaces/ACT","isServer":false},"labels":[],"projectKey":"ACT","serviceDeskId":8,"kbLinkDomainURLs":["https://sagebionetworks.jira.com"]},"createPermission":true,"portalAnnouncement":{"portalId":8,"canEditAnnouncement":false,"canAdministerProject":false,"portalProjectKey":"ACT","userLanguageHeader":"","userLanguageMessageWiki":"","defaultLanguageHeader":"","defaultLanguageMessage":"","defaultLanguageDisplayName":"English (United States)","isUsingLanguageSupport":false,"translations":{}},"canViewCreateRequestForm":true,"isProjectSimplified":false,"mediaApiUploadInformation":{"token":"eyJhbGciOiJIUzI1NiJ9.eyJpc3MiOiI2MzNhMzIzMC1mNzYxLTQ2YjEtYWI5Ny1jMmQ3OTY1MDYzNmMiLCJhY2Nlc3MiOnsidXJuOmZpbGVzdG9yZTpjb2xsZWN0aW9uOnVwbG9hZC1wcm9qZWN0LTEyMTY5IjpbInJlYWQiLCJjcmVhdGUiLCJ1cGRhdGUiXSwidXJuOmZpbGVzdG9yZTp1cGxvYWQ6KiI6WyJyZWFkIiwiY3JlYXRlIiwidXBkYXRlIl0sInVybjpmaWxlc3RvcmU6Y2h1bms6KiI6WyJyZWFkIiwiY3JlYXRlIl19LCJleHAiOjE3NzExMzU2MzYsIm5iZiI6MTc3MTEzNDQzNiwiYW5vbklkIjoiYW5vbi11c2VyIiwiaHR0cHM6Ly9pZC5hdGxhc3NpYW4uY29tL2FwcEFjY3JlZGl0ZWQiOmZhbHNlfQ.cKUh5IgKXu3mBuobSXJantrBO_oy6BthFSu2oJayceM","targetCollection":"upload-project-12169","endpointUrl":"https://api.media.atlassian.com","clientId":"633a3230-f761-46b1-ab97-c2d79650636c","tokenDurationInMins":20},"categories":{"categoriesSupported":true,"categories":[]}},"reqCreate":{"id":260,"projectId":12169,"issueType":{"id":"10184","name":"GENIE Data Access Requests"},"form":{"name":"GENIE Access Request","descriptionHtml":"","callToAction":"GENIE Access Request","intro":"","instructions":"","icon":12645,"iconUrl":"https://sagebionetworks.jira.com/rest/servicedeskapi/requesttype/icon/type/SD_REQTYPE/id/12645","key":""},"fields":[{"fieldType":"text","fieldId":"email","fieldConfigId":"","label":"Email confirmation to","description":"","descriptionHtml":"","required":true,"displayed":true,"presetValues":[]},{"fieldType":"text","jiraFieldType":"summary","fieldId":"summary","fieldConfigId":"","label":"Summary","description":"","descriptionHtml":"","required":true,"displayed":false,"presetValues":["GENIE Access Request"]}],"userOrganisations":[],"canBrowseUsers":false,"requestCreateBaseUrl":"/servicedesk/customer/portal/8/create/260","requestValidateBaseUrl":"/servicedesk/customer/portal/8/validate/260","calendarParams":{"firstDay":0,"date":"2026-02-14T21:47:17-0800","useISO8601WeekNumbers":false,"dateIfFormat":"%e/%b/%y","dateTimeIfFormat":"%e/%b/%y %I:%M %p","timeFormat":"12"},"kbs":{"kbEnabled":true,"kbLink":{"appLinkId":"a3b8e349-e434-3cd6-99b4-fcec3e545028","appLinkName":"System Confluence","appLinkUrl":"https://sagebionetworks.jira.com/wiki","spaceKey":"ACT","spaceName":"Access & Compliance Team","spaceUrl":"https://sagebionetworks.jira.com/wiki/spaces/ACT","isServer":false},"labels":[],"projectKey":"ACT","serviceDeskId":8,"kbLinkDomainURLs":["https://sagebionetworks.jira.com"]},"canRaiseOnBehalf":false,"canSignupCustomers":false,"canCreateAttachments":true,"attachmentRequiredField":false,"hasGroups":true,"canSubmitWithEmailAddress":false,"showRecaptcha":true,"siteKey":"6LePXLkdAAAAAF4gCNalrL1IvZcqbNbZf_Zakudd","mediaApiUploadInformation":{"token":"eyJhbGciOiJIUzI1NiJ9.eyJpc3MiOiI2MzNhMzIzMC1mNzYxLTQ2YjEtYWI5Ny1jMmQ3OTY1MDYzNmMiLCJhY2Nlc3MiOnsidXJuOmZpbGVzdG9yZTpjb2xsZWN0aW9uOnVwbG9hZC1wcm9qZWN0LTEyMTY5IjpbInJlYWQiLCJjcmVhdGUiLCJ1cGRhdGUiXSwidXJuOmZpbGVzdG9yZTp1cGxvYWQ6KiI6WyJyZWFkIiwiY3JlYXRlIiwidXBkYXRlIl0sInVybjpmaWxlc3RvcmU6Y2h1bms6KiI6WyJyZWFkIiwiY3JlYXRlIl19LCJleHAiOjE3NzExMzU2MzcsIm5iZiI6MTc3MTEzNDQzNywiYW5vbklkIjoiYW5vbi11c2VyIiwiaHR0cHM6Ly9pZC5hdGxhc3NpYW4uY29tL2FwcEFjY3JlZGl0ZWQiOmZhbHNlfQ.iPK2dUIIN_rAmWJGGzWjE_tsX27vsJat6VOwXehJ9wo","targetCollection":"upload-project-12169","endpointUrl":"https://api.media.atlassian.com","clientId":"633a3230-f761-46b1-ab97-c2d79650636c","tokenDurationInMins":20},"hasProformaForm":true,"proformaTemplateForm":{"id":784655406527257,"updated":"2025-04-18T18:58:36.157686205Z","publish":{"jira":{"submitOnCreate":true,"validateOnCreate":true},"portal":{"portalRequestTypeIds":[260],"submitOnCreate":true,"validateOnCreate":true}},"design":{"settings":{"templateId":784655406527257,"name":"GENIE Access Request","submit":{"lock":false,"pdf":false},"templateFormUuid":"720f9414-0995-4bdd-bdfb-0fba6613700d"},"layout":[{"version":1,"type":"doc","content":[{"type":"paragraph","attrs":{"localId":"6a3470b3-4c15-43d9-8215-6a809128d6d6"},"content":[{"type":"text","text":"As a condition of receiving access to the AACR Project GENIE database, you must first provide the following information:"}]},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":1},"layout":"default","localId":"0254492b-aaa9-49b4-9cae-4d970d4fc40c"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":2},"layout":"default","localId":"ef645dda-c88e-48e2-96c8-b047c0755868"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":3},"layout":"default","localId":"9a02492c-f585-467e-ac31-fa04ed097eca"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":19},"layout":"default","localId":"8295a28b-69c7-4be3-84e6-c24465a60441"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":20},"layout":"default","localId":"6f04d66c-b763-4291-b47b-110651624380"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":21},"layout":"default","localId":"7d71a8f8-21d4-4e1f-8968-f953bd863bd4"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":4},"layout":"default","localId":"ab5e75d0-1515-4be3-b96f-7a2de30d180e"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":5},"layout":"default","localId":"13584d59-c689-487a-ac2b-5b0936ea40db"}},{"type":"paragraph","attrs":{"localId":"aebdbf4a-3590-4404-86ba-49fa2017fe22"},"content":[{"type":"text","text":"In addition to providing the information requested above, you must certify whether you agree or disagree with the following statements. By clicking “agree” to any statement, you are certifying that the entire statement is true and correct, subject to any applicable penalties of perjury under the laws of the United States or otherwise."}]},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":10},"layout":"default","localId":"6f391933-17d6-4de5-a527-1fa92adfd445"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":11},"layout":"default","localId":"62ddcdd9-be10-4139-b34c-660ce396879f"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":12},"layout":"default","localId":"8d5c6b59-eb60-462d-a44a-9f9d33685c85"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":13},"layout":"default","localId":"1b8e97b1-ffa5-4c94-947d-424aa07c1a44"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":14},"layout":"default","localId":"7aea2a59-12ce-49b8-81fd-c55a6feff526"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":15},"layout":"default","localId":"932ae0f5-e3f0-436b-ba6c-05f6919ac56a"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":16},"layout":"default","localId":"17d4110f-113d-45d6-9584-bb3e3f28f0ee"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":17},"layout":"default","localId":"ed919f9e-8f5f-4cb4-90e6-4fec52e3a079"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":18},"layout":"default","localId":"1605d0a4-c96f-48f7-9de4-c77c9a97c30c"}},{"type":"paragraph","attrs":{"localId":"1dacd7a4-eb81-4994-9f1a-1e54a32dd45e"},"content":[{"type":"text","text":"Thank you for your submission. Please be aware that you must complete "},{"type":"text","text":"both","marks":[{"type":"strong"}]},{"type":"text","text":" the Synapse request form and this form to gain access to the data. You will receive an email confirmation once your request has been approved."}]},{"type":"paragraph","content":[]},{"type":"paragraph","attrs":{"localId":"4471ffec-a645-4ace-aa7e-b253ff0b5d26"},"content":[{"type":"text","text":"Please send any questions about this form to "},{"type":"text","text":"info@aacrgenie.org","marks":[{"type":"link","attrs":{"href":"mailto:info@aacrgenie.org"}}]},{"type":"text","text":"."}]}]}],"conditions":{},"sections":{},"questions":{"12":{"type":"cd","label":"I declare that I am not employed by, contracted by, or a representative or agent of an entity that has a principal place of business in, or is organized or chartered under the laws of China (including Hong Kong and Macau), Cuba, Iran, North Korea, Russia, or Venezuela.","description":"","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""},"19":{"type":"tl","label":"Country of residence","description":"","validation":{"rq":true},"choices":[],"questionKey":""},"4":{"type":"tl","label":"Name of employer, client, or entity that you represent","description":"","validation":{"rq":true},"choices":[],"questionKey":""},"13":{"type":"cd","label":"I declare that I am not employed by, contracted by, or a representative or agent of an entity that is 50% or more owned, directly or indirectly, individually or in the aggregate, by one or more of the governments of China (including Hong Kong and Macau), Cuba, Iran, North Korea, Russia, or Venezuela.","description":"","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""},"16":{"type":"cd","label":"I will not attempt to identify or contact individual participants whose data are included in the dataset, by any means.","description":"","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""},"5":{"type":"tl","label":"Country of employer, client, or entity that you represent","description":"","validation":{"rq":true},"choices":[],"questionKey":""},"10":{"type":"cd","label":"I declare that I have not been designated a “Covered Person” by the U.S. Attorney General pursuant to 28 CFR 202.211(a)(5) and/or 202.701. ","description":"Additional information available at http://www.justice.gov/nsd","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""},"21":{"type":"tl","label":"Country where currently located","description":"","validation":{"rq":true},"choices":[],"questionKey":""},"1":{"type":"tl","label":"Full Name","description":"Please provide your first and last name ","validation":{"rq":true},"choices":[],"questionKey":""},"20":{"type":"tl","label":"Country of citizenship","description":"","validation":{"rq":true},"choices":[],"questionKey":""},"2":{"type":"tl","label":"Email address","description":"","validation":{"rq":true},"choices":[],"questionKey":""},"18":{"type":"cd","label":"When publishing or presenting work based on or referencing the AACR Project GENIE data, I will: 1) Cite the following publication: AACR Project GENIE Consortium. AACR Project GENIE: Powering Precision Medicine Through an International Consortium, Cancer Discov. 2017 Aug;7(8):818-831. (include the version of the dataset used in your work.); 2) Include the following acknowledgement: \"The authors would like to acknowledge the American Association for Cancer Research and its financial and material support in the development of the AACR Project GENIE registry, as well as members of the consortium for their commitment to data sharing. Interpretations are the responsibility of the study authors.”; 3) Include the AACR Project GENIE logo on all posters and presentations.","description":"","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""},"3":{"type":"tl","label":"Synapse username","description":"","validation":{"rq":true},"choices":[],"questionKey":""},"15":{"type":"cd","label":"I declare that if any of these attestations become untrue, I will immediately cease access to any GENIE data and immediately contact AACR to provide notice of any change. ","description":"","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""},"11":{"type":"cd","label":"I declare that I am not a “foreign person” who is a resident within the territorial jurisdiction of China (including Hong Kong and Macau), Cuba, Iran, North Korea, Russia, or Venezuela. A “foreign person” is anyone who is not a citizen, national, or lawful permanent resident of the United States; admitted to the United States as a refugee under 8 U.S.C. 1157; granted asylum in the United States under 8 U.S.C. 1158; or physically located in the United States.","description":"","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""},"17":{"type":"cd","label":"I will not redistribute the data, in whole or in part, without express written permission from the AACR Project GENIE Coordinating Center.","description":"For written permission, email genieinfo@aacr.org","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""},"14":{"type":"cd","label":"I declare that I am not employed by, contracted by, or a representative or agent of an entity that is 50% or more owned, directly or indirectly, individually or in the aggregate, by any of the following: 1) “Covered Person,” as designated by the U.S. Attorney General pursuant to 28 CFR 202.211(a)(5) and/or 202.701; 2) “foreign person” who is a resident of China (including Hong Kong and Macau), Cuba, Iran, North Korea, Russia, or Venezuela [A “foreign person” is anyone who is not a citizen, national, or lawful permanent resident of the United States; admitted to the United States as a refugee under 8 U.S.C. 1157; granted asylum in the United States under 8 U.S.C. 1158; or physically located in the United States]; 3) an entity that has a principal place of business in, is organized or chartered under the laws of China (including Hong Kong and Macau), Cuba, Iran, North Korea, Russia, or Venezuela; or 4) an entity that is 50% or more owned, directly or indirectly, individually or in the aggregate, by one or more of the governments of China (including Hong Kong and Macau), Cuba, Iran, North Korea, Russia, or Venezuela. ","description":"","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""}}},"uuid":"720f9414-0995-4bdd-bdfb-0fba6613700d"},"proforma":{"formExists":true,"formValid":true,"formTemplateData":{"id":784655406527257,"updated":"2025-04-18T18:58:36.157686205Z","publish":{"jira":{"submitOnCreate":true,"validateOnCreate":true},"portal":{"portalRequestTypeIds":[260],"submitOnCreate":true,"validateOnCreate":true}},"design":{"settings":{"templateId":784655406527257,"name":"GENIE Access Request","submit":{"lock":false,"pdf":false},"templateFormUuid":"720f9414-0995-4bdd-bdfb-0fba6613700d"},"layout":[{"version":1,"type":"doc","content":[{"type":"paragraph","attrs":{"localId":"6a3470b3-4c15-43d9-8215-6a809128d6d6"},"content":[{"type":"text","text":"As a condition of receiving access to the AACR Project GENIE database, you must first provide the following information:"}]},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":1},"layout":"default","localId":"0254492b-aaa9-49b4-9cae-4d970d4fc40c"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":2},"layout":"default","localId":"ef645dda-c88e-48e2-96c8-b047c0755868"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":3},"layout":"default","localId":"9a02492c-f585-467e-ac31-fa04ed097eca"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":19},"layout":"default","localId":"8295a28b-69c7-4be3-84e6-c24465a60441"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":20},"layout":"default","localId":"6f04d66c-b763-4291-b47b-110651624380"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":21},"layout":"default","localId":"7d71a8f8-21d4-4e1f-8968-f953bd863bd4"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":4},"layout":"default","localId":"ab5e75d0-1515-4be3-b96f-7a2de30d180e"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":5},"layout":"default","localId":"13584d59-c689-487a-ac2b-5b0936ea40db"}},{"type":"paragraph","attrs":{"localId":"aebdbf4a-3590-4404-86ba-49fa2017fe22"},"content":[{"type":"text","text":"In addition to providing the information requested above, you must certify whether you agree or disagree with the following statements. By clicking “agree” to any statement, you are certifying that the entire statement is true and correct, subject to any applicable penalties of perjury under the laws of the United States or otherwise."}]},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":10},"layout":"default","localId":"6f391933-17d6-4de5-a527-1fa92adfd445"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":11},"layout":"default","localId":"62ddcdd9-be10-4139-b34c-660ce396879f"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":12},"layout":"default","localId":"8d5c6b59-eb60-462d-a44a-9f9d33685c85"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":13},"layout":"default","localId":"1b8e97b1-ffa5-4c94-947d-424aa07c1a44"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":14},"layout":"default","localId":"7aea2a59-12ce-49b8-81fd-c55a6feff526"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":15},"layout":"default","localId":"932ae0f5-e3f0-436b-ba6c-05f6919ac56a"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":16},"layout":"default","localId":"17d4110f-113d-45d6-9584-bb3e3f28f0ee"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":17},"layout":"default","localId":"ed919f9e-8f5f-4cb4-90e6-4fec52e3a079"}},{"type":"extension","attrs":{"extensionKey":"question","extensionType":"com.thinktilt.proforma","parameters":{"id":18},"layout":"default","localId":"1605d0a4-c96f-48f7-9de4-c77c9a97c30c"}},{"type":"paragraph","attrs":{"localId":"1dacd7a4-eb81-4994-9f1a-1e54a32dd45e"},"content":[{"type":"text","text":"Thank you for your submission. Please be aware that you must complete "},{"type":"text","text":"both","marks":[{"type":"strong"}]},{"type":"text","text":" the Synapse request form and this form to gain access to the data. You will receive an email confirmation once your request has been approved."}]},{"type":"paragraph","content":[]},{"type":"paragraph","attrs":{"localId":"4471ffec-a645-4ace-aa7e-b253ff0b5d26"},"content":[{"type":"text","text":"Please send any questions about this form to "},{"type":"text","text":"info@aacrgenie.org","marks":[{"type":"link","attrs":{"href":"mailto:info@aacrgenie.org"}}]},{"type":"text","text":"."}]}]}],"conditions":{},"sections":{},"questions":{"12":{"type":"cd","label":"I declare that I am not employed by, contracted by, or a representative or agent of an entity that has a principal place of business in, or is organized or chartered under the laws of China (including Hong Kong and Macau), Cuba, Iran, North Korea, Russia, or Venezuela.","description":"","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""},"19":{"type":"tl","label":"Country of residence","description":"","validation":{"rq":true},"choices":[],"questionKey":""},"4":{"type":"tl","label":"Name of employer, client, or entity that you represent","description":"","validation":{"rq":true},"choices":[],"questionKey":""},"13":{"type":"cd","label":"I declare that I am not employed by, contracted by, or a representative or agent of an entity that is 50% or more owned, directly or indirectly, individually or in the aggregate, by one or more of the governments of China (including Hong Kong and Macau), Cuba, Iran, North Korea, Russia, or Venezuela.","description":"","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""},"16":{"type":"cd","label":"I will not attempt to identify or contact individual participants whose data are included in the dataset, by any means.","description":"","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""},"5":{"type":"tl","label":"Country of employer, client, or entity that you represent","description":"","validation":{"rq":true},"choices":[],"questionKey":""},"10":{"type":"cd","label":"I declare that I have not been designated a “Covered Person” by the U.S. Attorney General pursuant to 28 CFR 202.211(a)(5) and/or 202.701. ","description":"Additional information available at http://www.justice.gov/nsd","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""},"21":{"type":"tl","label":"Country where currently located","description":"","validation":{"rq":true},"choices":[],"questionKey":""},"1":{"type":"tl","label":"Full Name","description":"Please provide your first and last name ","validation":{"rq":true},"choices":[],"questionKey":""},"20":{"type":"tl","label":"Country of citizenship","description":"","validation":{"rq":true},"choices":[],"questionKey":""},"2":{"type":"tl","label":"Email address","description":"","validation":{"rq":true},"choices":[],"questionKey":""},"18":{"type":"cd","label":"When publishing or presenting work based on or referencing the AACR Project GENIE data, I will: 1) Cite the following publication: AACR Project GENIE Consortium. AACR Project GENIE: Powering Precision Medicine Through an International Consortium, Cancer Discov. 2017 Aug;7(8):818-831. (include the version of the dataset used in your work.); 2) Include the following acknowledgement: \"The authors would like to acknowledge the American Association for Cancer Research and its financial and material support in the development of the AACR Project GENIE registry, as well as members of the consortium for their commitment to data sharing. Interpretations are the responsibility of the study authors.”; 3) Include the AACR Project GENIE logo on all posters and presentations.","description":"","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""},"3":{"type":"tl","label":"Synapse username","description":"","validation":{"rq":true},"choices":[],"questionKey":""},"15":{"type":"cd","label":"I declare that if any of these attestations become untrue, I will immediately cease access to any GENIE data and immediately contact AACR to provide notice of any change. ","description":"","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""},"11":{"type":"cd","label":"I declare that I am not a “foreign person” who is a resident within the territorial jurisdiction of China (including Hong Kong and Macau), Cuba, Iran, North Korea, Russia, or Venezuela. A “foreign person” is anyone who is not a citizen, national, or lawful permanent resident of the United States; admitted to the United States as a refugee under 8 U.S.C. 1157; granted asylum in the United States under 8 U.S.C. 1158; or physically located in the United States.","description":"","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""},"17":{"type":"cd","label":"I will not redistribute the data, in whole or in part, without express written permission from the AACR Project GENIE Coordinating Center.","description":"For written permission, email genieinfo@aacr.org","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""},"14":{"type":"cd","label":"I declare that I am not employed by, contracted by, or a representative or agent of an entity that is 50% or more owned, directly or indirectly, individually or in the aggregate, by any of the following: 1) “Covered Person,” as designated by the U.S. Attorney General pursuant to 28 CFR 202.211(a)(5) and/or 202.701; 2) “foreign person” who is a resident of China (including Hong Kong and Macau), Cuba, Iran, North Korea, Russia, or Venezuela [A “foreign person” is anyone who is not a citizen, national, or lawful permanent resident of the United States; admitted to the United States as a refugee under 8 U.S.C. 1157; granted asylum in the United States under 8 U.S.C. 1158; or physically located in the United States]; 3) an entity that has a principal place of business in, is organized or chartered under the laws of China (including Hong Kong and Macau), Cuba, Iran, North Korea, Russia, or Venezuela; or 4) an entity that is 50% or more owned, directly or indirectly, individually or in the aggregate, by one or more of the governments of China (including Hong Kong and Macau), Cuba, Iran, North Korea, Russia, or Venezuela. ","description":"","validation":{"rq":true},"choices":[{"id":"1","label":"Agree","other":false},{"id":"2","label":"Disagree","other":false}],"questionKey":""}}},"uuid":"720f9414-0995-4bdd-bdfb-0fba6613700d"},"linkedJiraFields":[]},"key":""},"portalWebFragments":{"headerPanels":[],"subheaderPanels":[],"footerPanels":[{"params":{},"key":"com.atlassian.plugins.atlassian-connect-plugin:com.spartez.jira.plugins.support-chat__sd-portal-chat-footer-portal","name":"sd-portal-chat-footer","html":"<div class=\"ap-container\" id=\"ap-com.spartez.jira.plugins.support-chat__sd-portal-chat-footer-portal\">\n\n <div class=\"ap-content \" id=\"embedded-com.spartez.jira.plugins.support-chat__sd-portal-chat-footer-portal\"></div>\n <script class=\"ap-iframe-body-script\">\n (function(){\n var data = {\n \"addon_key\":\"com.spartez.jira.plugins.support-chat\",\n \"uniqueKey\":\"com.spartez.jira.plugins.support-chat__sd-portal-chat-footer-portal\",\n \"key\":\"sd-portal-chat-footer-portal\",\n \"moduleType\":\"webPanels\", \"moduleLocation\":\"servicedesk.portal.footer.portal\", \"title\":\"sd-portal-chat-footer\", \"cp\":\"\",\n \"general\":\"\",\n \"w\":\"\",\n \"h\":\"\",\n \"url\":\"https://chat-api.spartez-software.com/sd-portal-chat?serviceDeskId=8&location=footer&xdm_e=https%3A%2F%2Fsagebionetworks.jira.com&xdm_c=channel-com.spartez.jira.plugins.support-chat__sd-portal-chat-footer-portal&cp=&xdm_deprecated_addon_key_do_not_use=com.spartez.jira.plugins.support-chat&lic=none&userAccess=true&cv=1001.0.0-SNAPSHOT&jwt=eyJ0eXAiOiJKV1QiLCJhbGciOiJIUzI1NiJ9.eyJxc2giOiIwYmQwNmU0YmU4MmUzNzQyOGFkYjA1NDI4MTg3Y2Q1ZTJhNzFkNWExMGU4NDMwZWZmYTk3NWE2ZDYwYTlmNmJkIiwiaXNzIjoic2FnZWJpb25ldHdvcmtzLmppcmEuY29tIiwiY29udGV4dCI6e30sImV4cCI6MTc3MTEzNTMzNiwiaWF0IjoxNzcxMTM0NDM2fQ.7sL21rJcYNmXYijPrw9OxJFN-OsAltQQ9GKtjAvZy78\",\n \"contextJwt\": \"eyJ0eXAiOiJKV1QiLCJhbGciOiJIUzI1NiJ9.eyJxc2giOiJjb250ZXh0LXFzaCIsImlzcyI6InNhZ2ViaW9uZXR3b3Jrcy5qaXJhLmNvbSIsImNvbnRleHQiOnsibmF2Ijp7ImlzTmV3TmF2aWdhdGlvbiI6dHJ1ZX0sInVybCI6eyJkaXNwbGF5VXJsIjoiaHR0cHM6XC9cL3NhZ2ViaW9uZXR3b3Jrcy5qaXJhLmNvbSIsImRpc3BsYXlVcmxTZXJ2aWNlZGVza0hlbHBDZW50ZXIiOiJodHRwczpcL1wvc2FnZWJpb25ldHdvcmtzLmppcmEuY29tIn0sImppcmEiOnsicHJvamVjdCI6eyJrZXkiOiJBQ1QiLCJpZCI6IjEyMTY5In19fSwiZXhwIjoxNzcxMTM1MzM2LCJpYXQiOjE3NzExMzQ0MzZ9.XHvBCsJrYO5Mz4-5WWsLXO9YK5y7Ns_e37MLStxQZn0\", \"structuredContext\": \"{\\\"nav\\\":{\\\"isNewNavigation\\\":true},\\\"url\\\":{\\\"displayUrl\\\":\\\"https://sagebionetworks.jira.com\\\",\\\"displayUrlServicedeskHelpCenter\\\":\\\"https://sagebionetworks.jira.com\\\"},\\\"jira\\\":{\\\"project\\\":{\\\"key\\\":\\\"ACT\\\",\\\"id\\\":\\\"12169\\\"}}}\",\n \"contentClassifier\":\"\",\n \"productCtx\":\"{\\\"project.key\\\":\\\"ACT\\\",\\\"project.id\\\":\\\"12169\\\",\\\"servicedesk.serviceDeskId\\\":\\\"8\\\",\\\"servicedesk.requestTypeId\\\":\\\"260\\\"}\",\n \"timeZone\":\"America/Los_Angeles\",\n \"origin\":\"https://chat-api.spartez-software.com\",\n \"hostOrigin\":\"https://sagebionetworks.jira.com\",\n \"sandbox\":\"allow-downloads allow-forms allow-modals allow-popups allow-popups-to-escape-sandbox allow-scripts allow-same-origin allow-top-navigation-by-user-activation allow-storage-access-by-user-activation\", \"pearApp\":\"true\", \"apiMigrations\": {\n \"gdpr\": true\n }\n}\n;\n if(window.AP && window.AP.subCreate) {\n window._AP.appendConnectAddon(data);\n } else {\n require(['ac/create'], function(create){\n create.appendConnectAddon(data);\n });\n }\n }());\n</script>\n\n</div>\n"}],"pagePanels":{"propertyPanels":[],"legacyPropertyPanels":[]}}}