Sage Bionetworks Help Center
  1. Sage Bionetworks Help Center
  2. Amplifying Data for Evidence and Learning (ADEL) Service Desk

Amplifying Data for Evidence and Learning (ADEL) Service Desk

Welcome! The Amplifying Data for Evidence and Learning (ADEL) Service Desk is for requests related to data contributions and user support for the Alzheimer’s Disease Knowledge Portal, the Exceptional Longevity Knowledge Portal, and the ALS Knowledge Portal.

You can raise a support request with the AD Knowledge Portal Data Coordination Center (AD DCC), the Exceptional Longevity Data Management and Coordination Center (EL DMCC), or the ALS Knowledge Portal Data Coordination Center (ALS DCC) by opening an issue here.

Note that there is no coverage provided on weekends, evenings, and holidays.

For more information, visit:
https://help.adknowledgeportal.org/apd/
https://help.eliteportal.org/help/
https://ampals.synapse.org/

Contact us about

Data Sharing Support
Add Data to a New Study, Add Data to an Existing Study, Add Analytical Outputs, Community Data Contribution Program, Request a DOI for Publication.

General Support
Report a bug, Suggest an improvement, or Ask other questions.

Data Sharing Support

Community Data Contribution Program

Use this request type if you want to contribute data to one of the Knowledge Portals through the Community Data Contribution Program (CDCP).

Required fields are marked with an asterisk*

Please provide the name, institution, and email address for the person who be the main point of contact for the data contribution.

What is the name and email of the data uploader? This person is responsible for assembling the required metadata and uploading the data and metadata to Synapse, and therefore, they must be familiar with with R, Python, or the Command Line in order to use the Synapse API clients.

What is the name of the lead principal investigator(s)?

Applicable to pre-award submissions only

Please enter the grant number and/or name of the primary funding source/institution for the data you wish to contribute

Please provide the name of the project/study this data is associated with and a brief description of the study along with the names of any human cohorts included in the data

Please name and describe any cohort demographics, including age ranges, age groupings, race, and ethnicity included in the data

Please list any phenotypic or clinical variables included in this data. E.g. neuropathology, cognition, social determinants of health

What data types will be provided for this study? Please include the estimated total size of the expected data (in MB, GB or TB)

A Limited Data Set is Protected Health Information (PHI) that excludes all identifiers except for age over 89, dates and geographic information at the zip code, town, city, or state level.

What is the estimated number of individuals included in this study?

What is the estimated number of samples included in this study?

Please describe what is the scientific value of this data to research? Why should this data be hosted specifically on one of our Portals? What studies have been performed on the data (either published or pilot studies)?

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