If you would like to submit data to the NF Data Portal, steps to do so are outlined below. Please note that if your project has been funded by one of our partners, we will be in touch with you, and you may have additional obligations to fulfill beyond the steps below, such as attending onboarding.

Data Sharing Step-by-Step

  1. Become a certified Synapse user. This involves:

  2. Complete a data sharing plan (DSP). (Note: Some DSPs are tailored to specific funders, including CTF, GFF - GTI and VRINTAP, and DHART-SPORE.)

  3. Complete the data project intake form, which will collect information needed to set up a Synapse project and list it as a study on NF Data Portal, including the project title and abstract, lead investigators, who should have access to the project, and other details. (Note: you can attach your completed DSP from step #2 to this form, if you wish.

  4. Once we receive your information, we’ll review your submission, and (if approved) work with you to create a Synapse project and deposit your data in Synapse.

  5. Once your data are already generated and ready for public release, ensure that:

  6. Once all data is deposited and the embargo period ends, we’ll share your data on the NF Data Portal.