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How to Share Data (an Overview)

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If you would like to submit data to the NF Data Portal, steps to do so are outlined below. Please note that if your project has been funded by one of our partners, you may have additional data sharing obligations outlined in your agreement with the funder.

Data Sharing Step-by-Step

  1. Become a certified Synapse user. This involves:

  2. Complete a data sharing plan (DSP). (Note: Some DSPs are tailored to specific funders, including CTF, GFF - GTI and VRINTAP, and DHART-SPORE.)

    • Please ensure that you have the appropriate permission and authority to share data from this study (such as Institutional Review Board approval, informed consent, etc.). If you need to place conditions for use (access restrictions) on your data, please let us know (and be sure to detail them in your data sharing plan).

  3. Complete the project detail intake form, which will collect information needed to set up a Synapse project and list it as a study on NF Data Portal, including the project title and abstract, lead investigators, who should have access to the project, and other details. (Note: you can attach your completed DSP from step #2 to this form, if you wish.

  4. Once we receive your information, we’ll review your submission, and (if approved) work with you to create a Synapse project and deposit your data in Synapse.

  5. Upload your data.

  6. Annotate your data.

  7. Once your data are ready for public release, ensure that:

  8. Once all data is deposited and the embargo period ends, we’ll share your data on the NF Data Portal.

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