Welcome to the NF Data Portal docs site!
This site exists to help orient you to the portal and use it with ease to make the most of your experience.
What’s here for you?
Read about the background of the portal and how it fits into the bigger data-sharing picture
Get familiar with the basic structure of the portal
Refer to the glossary if you come across a term you’re unsure of
Learn how to navigate and use the portal to explore and access data
Discover how to contribute data, if that’s what you’re here for
What do you need to get started?
So, before you dive in, here’s a breakdown of what you need to get started using the portal:
Exploring data
Thanks to the open science principles that the portal is built on, anyone can browse its content! Nothing needed to explore—just go right ahead (and remember to use this site for help).
Downloading data
If you want to download data, you will need to register for a Synapse account and, in doing so, agree to the Synapse Terms and Conditions of Use (learn about Synapse here).
Some data on the portal is considered Controlled Use and requires an additional submission of a Data Use Certificate (DUC). This can take some time so make sure to go through this step as soon as possible.
Find more detailed information on data access here.
Using data
If you plan to use any data downloaded from the portal in any publications, whether the data is open use or controlled use, you must include an official acknowledgement of the data contributors. Find pre-written acknowledgement statements here.
Contributing data
Do you have data, analyses, or tools that may benefit Alzheimer’s disease research? You may be eligible to become a community contributor and have your resources hosted in the AD Knowledge Portal. You must apply, and contributions will be evaluated based on relevance to Alzheimer’s disease, complementarity to existing data, and unmet needs.
To learn more about data contributions and whether you might be eligible, visit the portal’s Contribute page.
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