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Sharing Data

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Data shared in Synapse may have Conditions for Use that define restrictions on how it may be disclosed or what the data set may contain based on privacy laws or regulation.

You must be a Certified User to contribute data to Synapse. You are responsible for determining if the data you would like to contribute is Controlled Use and therefore requires Conditions for Use. Carefully consider the specific risks and appropriate protections required before sharing your data.

If there are no ethical, legal or regulatory reasons to impose Conditions for Use, the data can be used for any lawful research purpose. All human data shared in Synapse, with or without Conditions for Use, must be de-identified according to HIPAA standards and comply with all applicable privacy laws and regulations. Guidance on de-identification according to HIPAA rules can be found here.

Conditions for Use can be set at the ProjectFolderFile and Table level. We recommend grouping Files that require the same Conditions for Use in a dedicated Folder within your Project. For more information about setting Conditions for Use please see Access Controls and Data Governance.

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