The NF Data Portal is a public data repository that stores and shares data generated by multiple collaborative research programs focused on neurofibromatosis (NF) diseases (neurofibromatosis type 1, type 2NF2-related-schwannomatosis, and other forms of schwannomatosis). Collaborators and Sage Bionetworks support the portal, open science, and the NF research community through the effort collectively called the NF Open Science Initiative (NF-OSI). Children’s Tumor Foundation (CTF) and the Neurofibromatosis Therapeutic Acceleration Program (NTAP) participation dates back to 2014. More recent participants include the Gilbert Family Foundation (GFF), the Developmental and Hyperactive Ras Tumor SPORE (DHART-SPORE), and the CDMRP Neurofibromatosis Research Program (NFRP). You can read more about these programs here. Importantly, anyone in the NF research community can join the NF-OSI. Learn more about joining the NF-OSI here.
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