Whether you’re a scientist, a bioinformatician, a data scientist, or a member of the general public looking for data, data on the NF Portal can be explored and accessed in multiple ways. The portal offers helpful filtering tools to help you find data of interest. Much of the data and resources uploaded into the portal are labelled with annotations, so they can be easily used to help query the list of resources in each page. You can find a detailed breakdown of metadata definitions and explanations in our metadata dictionary.
Data Status Definitions
Data Pending: Data has not been uploaded yet to Synapse.
Under Embargo: The project is either in progress or complete, but data is not released. After the grant ends, data contributors typically are provided an embargo period of 12-18 months to publish results. (This varies by funder).
Available: Data that is ready for public use. The data still might have access controls on it due to the sensitivity of data, but otherwise, data can be downloaded.
Data Not Expected: Data that was not originally planned or anticipated in a dataset.
Partially Available: Data for which only some portions are accessible, while others are still being prepared or restricted.
Rolling Release: A continuous and ongoing process of making new data available. An example of this might be a continuous generation of the same type of data collected from cohorts over a period of time.
Is all data equally accessible?
...
To help explain how to use these sections, refer to the following bullet points and the corresponding image below:
red arrows → When exploring the Files subtab, the Filter Data By sections that appear by default are: Assay, Data Type, and Tumor Type
red rectangle → There are various other categories that you can expand and filter by as well—click the plus sign next to any of these (File Format, Funding Agency, Individual ID, NF1 Genotype, NF2 Genotype, etc.) to reveal its filtering options
red circles → At the end of each category, click on Show more to reveal all filters for that category
search icons → Notice that there is a search icon within each category—use this to search for specific filters within the category
...
For a walkthrough of how to access data that has access restrictions, see this guide which uses The Johns Hopkins Biospecimen Repository data as an example.
...
...