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How do I share my data?
In brief, to share data, you must register your study and the data you intend to share, upload the data to a private workspace in the Synapse data sharing platform, and annotating the data, and releasing the data. Please read the How to Share Data (an Overview) guide for step by step instructions.
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Where can I find definitions for terms in the NF-OSI dictionary?
The Versioned releases of our core NF-OSI metadata dictionary is are hosted on Google Sheets Github in CSV and JSON format.
The Attribute column lists all NF-OSI terms: concepts (like dataType) and values for those concepts (like geneExpression)
The Description column provides a definition for each Attribute
The Valid Values column lists all of the terms that are allowed for concepts listed in the Attribute column
The remaining columns are out of the scope of this FAQ, but are documented in detail here.
You may also find ourhttps://help.nf.synapse.org/NFdocs/2560131149.html helpful for exploring the metadata dictionary.
My experiment “failed” - do I still need to share the data?
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If “failed” means that the results are unusable or uninterpretable and you plan to re-try the experiment (for example: an in vitro cancer cell line-based assay was contaminated with yeast), then no, it generally is not worth sharing the raw data for these experiments.
I’m about to publish a manuscript, how do I reference my data in my “Data Availability Statement” in the publication?
If your data has been submitted to the NF Data Portal, you should first create a DOI for your project or folder that contains the data. Learn more about creating a DOI: https://help.synapse.org/docs/Digital-Object-Identifiers-(DOIs).1972405096.html.
Then, send us a message at nf-osi@sagebionetworks.org telling us you are ready to release your data. We’ll review the project to make sure the data are properly annotated and to ensure that the permissions settings are correct so that the community can access the data.
Finally, include the DOI in your data availability statement. For example, this statement links to the the Synodos NF2 project:
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“Raw data for this manuscript is available on the NF Data Portal (nf.synapse.org) and on Synapse at https://www.doi.org/10.7303/syn2343195. |
How do I cite data in the NF Portal?
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When re-using data from the portal, please acknowledge the NF Data Portal using the following statement: "The results published here are in whole or in part based on data obtained from the NF Data Portal (http://www.nf.nfdataportalsynapse.org, RRID:SCR_021683) and made available through the NF Open Science Initiative." Including this statement in your acknowledgements helps us find your publications and list them on the portal, and helps us track the impact of the portal on the research community. |
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We also have a Research Resource ID that you can use to refer to the portal: RRID:SCR_021683.
What are the requirements associated with publications or preprints linked to my study?
For any publications or preprints linked to your study, please send the following information to nf-osi@sagebionetworks.org:
Pubmed ID
DOI (if available)
Disease focus (NF1, NF2 or Schwannomatosis)
Manifestation (disease manifestation(s) under study—for example, the type of tumor)
Funding Agency (the funding organization for the publication)
How do I stay up to date with data releases and other NF-OSI activity?
We post data releases and many other items of interest (open grant opportunities, jobs, events) both on Twitter and in our quarterly(ish) newsletter.
Be sure to follow us on Twitter @nfopensci and sign up for our newsletter!