You can control who has access to the data you contribute to Synapse in two ways. First, you determine who can access content by using sharing settings. One of the ways that Synapse governance supports responsible data sharing is through data access types. While user account types are applied to the user, data access types are applied to the data itself. The parameters of data access for any dataset is defined by contributors of that data.
Data access can be controlled in two layers: sharing settings and conditions for use.
Sharing settings enable you to list the individuals or teams who can view your project, and the permissions those groups have with respect to a specific dataset. You can use sharing settings to authorize who can view, edit, download, or delete data.
In addition to sharing settings, the second way to control who can access your data is You can add an additional layer of data protection by applying conditions for use. These restrictions define how users who have permission to download your data may use it. Conditions for use may include IRB approval or other restrictions defined by that you define as the data contributor.
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When both sharing settings and conditions for use are applied, then users must qualify for data access through both
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To learn more about these features in Synapse, visit the Sharing Settings and Conditions for Use pages.
Data Access Tiers
All content in Synapse has sharing settings, but not all content has conditions for use. Generally, data in Synapse can be categorized in four tiers based on its availability:
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of these restrictions.
For information on sharing settings and conditions for use, including how to set them, see ______.
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There are four data access types in Synapse:
Private Access Data
Data set to private access is visible only to you and other users whom you select in
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Controlled Access Tier: Available to registered, certified, or validated users that fulfill specific requirements for data access, such as submitting an Intended Data Use statement, obtaining IRB approval, agreeing to data use limitations, or other prerequisites.
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Open Access Tier (also called open access data or open use data): Available for all registered Synapse users without use limitations.
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Anonymous Access Tier: Available for anyone on the web without Conditions for Use.
Private Access Data
By default, sharing settings. It is not viewable to any other Synapse users. This is the default setting when you create a new project in Synapse, the sharing settings are set to private and any data that you add will only be visible to you. Private access data also includes data that you share only with individual Synapse users or teams through sharing settings, but it is not viewable to other Synapse users.
Controlled Access Data
Controlled access data is generally .
Controlled Access Data
Data set to controlled access can be available to registered, certified, and validated users that fulfil specific requirements for data access through conditions of use that you set.
Controlled access data typically represents human data that contains sensitive information that . Misuse of this data could potentially cause harm to those individuals or groups if misusedgroup. Therefore, you must meet certain data contributors can define conditions for use before you can gain access to it. These protections are defined by the data contributor and specify how the data can be used by those who have access to it. Controlled access data can only be downloaded and used by those authorized Synapse users, and it is not transferable unless explicitly specified otherwise. In other words, you cannot share controlled access data freely with other collaborators; each to do so, and this data may never be redistributed. Any Synapse user wishing to use controlled access data must individually request access to the data. To learn more about conditions for use and how to apply them to your data, see Conditions for Use.
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Examples of controlled access data include one or more of the following:
Data at risk of re-identifying research participants
Genetic sequence or genotype data from living individuals
Data from “vulnerable” populations as defined using OHRP guidelines
Data generated with restrictions or requirements for use as outlined in informed consents or legal agreements
To learn more about conditions for use and how to apply them to your data, see Conditions for Use.
Open Access Data
Unlike controlled access data, open access data does not require limitations on its use. Open access data is subject to general terms and conditions as specified in the Synapse /wiki/spaces/DOCS/pages/2004255236, and data users must have a registered Synapse account to download it. Data set to open access is available to all registered Synapse users, without additional use limitations.
Typically, open access data include:
Data from model organisms, species, or strains
Non-biological data, like data used for the calibration of instruments
Human data that are:
Publicly available elsewhere
De-identified and non-sensitive, with no known sharing or use restrictions
Self-contributed and unambiguously consented for open data sharing and use
Anonymous Access Data
Anonymous access data is similar to open data, except it Data set to anonymous access is available for anyone on the web to view and download, with or without (users do not need a registered Synapse account . to access)
Anonymous access data could be:
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To make your open data available to anonymous users, contact the Synapse Access and Compliance Team (ACT) at act@sagebase.org.Include Page