Page Comparison

To prepare for a research team’s data contribution, there are several steps the Data Curator will perform:

• Open Github issue (View)

• Add grant information to Projects table

• Coordinate an Onboarding call between:

  • Principal Investigators

  • Data Liaison and Uploader

  • DCC Curator and Director

Onboarding Call Agenda

• Tour AD Knowledge Portal

• Discuss Study Organization

• Discuss Roles & Responsibilities

  • Discuss sites, individuals, and timeline

• Discuss the Planned Data Contribution

  • Experimental Tools

  • Metadata

  • Data (assays performed, data types)

• DCC Promotion

  • Newsletter

  • Manuscript Pages

Following Call

• Governance Team will contact PI(s) to review contributions and addendum signing

• PI will complete data survey detailing contribution

• Schedule training session on metadata templates and validation

• Create a Jira ticket for Governance to perform Attachment process

• Update Grant Outputs table with details from data survey

• 1. Introductory email to schedule an onboarding call

• 2. Onboarding follow-up email

• 3. Metadata validation email

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1. Introduction and Schedule Onboarding Meeting

SUBJECT: MODEL-AD Onboarding – Data Submission

<GREETING>

I am contacting you on behalf of the MODEL-AD Data Coordination Center (DCC) managed by Sage Bionetworks regarding your grant <GRANT_NUMBER>. MODEL-AD consortium members are required to share data according to the agreed-upon grant milestones and the DCC is responsible for managing the data shared among consortium members, and for the public release of data, analyses, and tools through the AD Knowledge Portal.

1. To get started, PIs and team members must register for a Synapse account.

   1. Register here: https://www.synapse.org/#

   2. Note the Synapse terms of use: https://docs.synapse.org/articles/governance.html

   3. Profiles should include your full name, institution, photo, and a brief bio. See example.

2. To join the MODEL-AD team and gain access to the private collaboration space, PIs need to create their Synapse account and submit their Synapse username through this form.

3. Complete the MODEL-AD - Data Contribution Form about the data (assays, samples, data types) you plan to contribute during your grant funding period. Please email me your grant's data sharing plan, including yearly milestones. Please send this information before our onboarding call so we can clarify any remaining questions and to prepare the required infrastructure to securely receive and store your data.

4. Send me your schedule availability for the next few weeks. I will send you an invitation for an onboarding call (1 h) to go over the data you expect to contribute, the timeline of the contribution, and the expectations involved in data transfer and sharing. Please feel free to extend the invitation to any members of your team.

<SIGNATURE>

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Onboarding Meeting Agenda

• Tour AD Knowledge Portal

• Discuss Study Organization

• Discuss Roles & Responsibilities (sites, individuals, and timeline)

• Discuss the Planned Data Contribution

  • Experimental Tools

  • Metadata Templates & Validation

  • Data (assays performed, data types)

• DCC Promotion

  • Newsletter

  • Manuscript Pages

Following the Onboarding Meeting

• Governance Team will contact PIs to review contributions and addendum signing

• Create a Jira ticket for Governance to perform Attachment process

• PI will complete the Data Contribution form

• Curator will schedule Metadata Templates and Validation Meeting

• Update Grant Outputs table with details from data survey

2. Onboarding follow-up email

SUBJECT: MODEL-AD Onboarding – Data Submission – Follow-up

<GREETING>

Here is an overview of the expected data contributions and timelines for your study:

• Program: MODEL-AD

• Study: <STUDY_NAME>

• Data:

  • Assay_1 – -- Data type, # of samples

  • Assay_2 – -- ..

  • Assay_n – -- ..

We also need:

x, y, and z

Please reply to this email with the below information:

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