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Thanks to the open science principles that the portal is built on, anyone can browse its content! You don’t need to setup anything to simply explore the portal—just portal—just go right ahead (and remember to use this site for help).
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Some data on the portal is considered controlled access and requires you to request access by reading and electronically agreeing to data-specific terms. Learn how to do so
For studies that contain controlled access data, you can find information on requesting access within the Study Details page of that study—such as seen here. You can also find general information on requesting access for any study in the Synapse documentation, here.
Using data
If you plan to use any data downloaded from the portal in any publications, whether the data is open use or controlled useaccess, we ask that you include an acknowledgement of use. To cite the NF Data Portal in a publication, please cite this articleYou can find specific acknowledgement statements within the Study Details page of any study—such as seen here.
Contributing data
Do you have data, analyses, or tools that can benefit NF research? You may be eligible to become a community contributor and have your resources hosted in the NF Data Portal. There are several steps that you must complete in order to set up your data sharing, and additional steps to complete if your project has been funded by one of our partners. See this page for an overview of what’s involved in sharing data.
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