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Note

Please ensure that you have the appropriate permission and authority to share data from this study (such as Institutional Review Board approval, informed consent, etc.). If you need to place conditions for use (access restrictions) on your data, please let us know (and be sure to detail them in your DSP).

Sharing data involves the following actions, to be completed in order:

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This is designed to collect the information needed to set up a Synapse project and list is it as a study on the NF Data Portal. It’s a short form that will ask you for simple details like the project title and abstract, lead investigators, who should have access to the project, and more.

You must also submit your completed DSP from step 2 to along with this form (there will be a place to upload it).

Find the project detail intake form here.

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Once your data are ready for public release, you’ll want to review your project to make sure it’s ready good to go! Most importantly, make sure you have the appropriate permission and authority to share the data. Additionally, check that your data are properly annotated with metadata and that all associated details are correct.

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