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The open access data in the NF Data Portal is generated by studies backed by funding organizations, including Children’s Tumor Foundation (CTF), Neurofibromatosis Therapeutic Acceleration Program (NTAP), and Gilbert Family Foundation (GFF). Some studies are funded in conjunction with one another—such a group of funded projects is called an initiative on the portal. Funded studies produce data files, metadata (also called annotations), publications, and biological tools like cell lines, mouse models, and plasmids. Study products, such as multiple data files, may be bundled into a dataset, or explored and analyzed with computational tools developed by the community.
Learn about the organizational structure of the portal here.
History
The NF Data Portal was built by members of the NF Open Science Initiative (NF-OSI), an alliance that was formed to support open science within the neurofibromatosis and schwannomatosis research community. NF-OSI is the result of a collaboration effort between Children’s Tumor Foundation (CTF) and the Neurofibromatosis therapeutic acceleration program (NTAP) that dates back to 2014 (you can read more about these programs here). This is an open effort focusing on finding NF treatments by sharing data and analysis results with the broader community—an effort aided by the existence of the NF Data Portal.
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