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Because NF diseases are relatively rare, samples and data generated in this area are precious. This is why open science principles are so valuable—data sharing and collaboration maximizes the value and impact of research. The NF Data Portal exists to support this joint effort. Read more about open science and data sharing here.
The open access data in the NF Data Portal is generated by studies backed by funding organizations, including Children’s Tumor Foundation (CTF), Neurofibromatosis Therapeutic Acceleration Program (NTAP), and Gilbert Family Foundation (GFF). Some studies are funded in conjunction with one another—such a group of funded projects is called an initiative on the portal. Funded studies produce data files, metadata (also called annotations), publications, and biological tools like cell lines, mouse models, and plasmids. Study products, such as multiple data files, may be bundled into a dataset, or explored and analyzed with computational tools developed by the community.
Learn about the organizational structure and contents of the portal here.
History
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