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An individual ID is the identifier for a specific individual (human subject or single animal).
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Initiative
In our context, an initiative describes a group of projects that were funded under the same grant mechanism.
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File annotations
File annotations are a set of controlled vocabulary associated with data files that describe properties of the data to allow for queries. Also known as metadata, these annotations are essentially extra information about the data so that you can properly search and filter through it.
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A grant is represented by a contract number and/or digital object identifier assigned to a NIH-funded project.
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Metadata
Metadata provides information about the data in the portal. Metadata can be associated with individual subjects and/or with files. Understanding how metadata works is essential to the successful use of Synapse and the NF Data Portal.
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The act of checking metadata for correct values and formatting.
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In our context, a program represents a group of scientists working together towards a common research goal. In this way, “Consortia” is often used interchangeably with “program.” An exception is the Community Data Contribution Program, where researchers outside of the funded programs contribute data and other content to the portal.
Project
In our context, a project is typically associated with an NIH grant. So, the terms project and grant are often used interchangeably. However, some projects span multiple grants, or are led by program partners that are not grant-funded.
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Schema
An overlapping concept to data model, a metadata schema provides further rules and standardization of a data model. It outlines additional rules governing the management of metadata through constraints such as the optionality or valid values of attributes.
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A study is the primary unit of data organization in the portal. Essentially, each study represents an individual research project with specific objectives and focus (one project can operate multiple studies) A study can represent data generated from a specific human cohort, data from experiments on a model system, cross-consortium data processing and analysis efforts, or data associated with a specific publication.
In our context, a study is typically associated with an grant. So, the terms study and grant are often used interchangeably. However, some studies span multiple grants, or are led by program partners that are not grant-funded.
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Template
A manifest template is a template, usually an excel spreadsheet, that outlines a collection of specific metadata attributes pertaining to a data type to be filled in. The columns of the template refer to the metadata attributes to be collected for a set of corresponding data. In other words, it describes a set of key/value pairs that can be assigned to a data file(s) of the same data type.
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