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Read about the background of the portal and how it fits into the bigger data-sharing picture
Get familiar with the basic structure of the portal
Refer to the glossary if you come across a term you’re unsure of
Understand how to successfully contribute data to the portal
Learn how to navigate and use the portal to explore and access dataDiscover how to contribute data, if that’s what you’re here for
What do you need to get started?
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Some data on the portal is considered Controlled Use and requires an additional submission of a Data Use Certificate (DUC). This can take some time so make sure to go through this step as soon as possible.Find more detailed information on data access you to request access by reading and electronically agreeing to data-specific terms. Learn how to do so here.
Using data
If you plan to use any data downloaded from the portal in any publications, whether the data is open use or controlled use, we ask that you must include an official acknowledgement of the data contributors. Find pre-written acknowledgement statements hereuse. To cite the NF Data Portal in a publication, please cite this article.
Contributing data
Do you have data, analyses, or tools that may benefit Alzheimer’s disease NF research? You may be eligible to become a community contributor and have your resources hosted in the AD Knowledge NF Data Portal. You must apply, and contributions will be evaluated based on relevance to Alzheimer’s disease, complementarity to existing data, and unmet needs.To learn more about data contributions and whether you might be eligible, visit the portal’s Contribute pageThere are several steps that you must complete in order to set up your data sharing, and additional steps to complete if your project has been funded by one of our partners. See this page for an overview of what’s involved in sharing data.