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New Welcome to the NF Data Portal ? Browse these articles to learn about it.

  • About the NF Data Portal

  • The Data Lifecycle

  • NF Data Portal, Synapse, and Sage Bionetworks

  • Intro to Data Sharing

What’s next? Once you’re familiar with the topics above, you’re ready to get comfortable with using the portal. Explore the following sections:docs site!

This site exists to help orient you to the portal and use it with ease to make the most of your experience.

What’s here for you?

What do you need to get started?

So, before you dive in, here’s a breakdown of what you need to get started using the portal:

Exploring data

Thanks to the open science principles that the portal is built on, anyone can browse its content! Nothing needed to explore—just go right ahead (and remember to use this site for help).

Downloading data

If you want to download data, you will need to register for a Synapse account and, in doing so, agree to the Synapse Terms and Conditions of Use (learn about Synapse here).

Some data on the portal is considered Controlled Use and requires an additional submission of a Data Use Certificate (DUC). This can take some time so make sure to go through this step as soon as possible.

Find more detailed information on data access here.

Using data

If you plan to use any data downloaded from the portal in any publications, whether the data is open use or controlled use, you must include an official acknowledgement of the data contributors. Find pre-written acknowledgement statements here.

Contributing data

Do you have data, analyses, or tools that may benefit Alzheimer’s disease research? You may be eligible to become a community contributor and have your resources hosted in the AD Knowledge Portal. You must apply, and contributions will be evaluated based on relevance to Alzheimer’s disease, complementarity to existing data, and unmet needs.

To learn more about data contributions and whether you might be eligible, visit the portal’s Contribute page.