...
...
...
...
...
...
...
...
...
...
...
...
...
...
...
...
...
...
...
...
Audience: Sage ACT
Table of Contents:
| Table of Contents |
|---|
...
Current mHealth Datasets
...
available
mPower (syn4993293)
Demographics, Memory, Tapping, Voice, Walking
Require Additional Steps: MDS-UPDRS survey data, PDQ-8 survey data
Mole Mapper (syn5576734)
Baseline demographics survey, follow-up survey data, mole removal indicator, mole measurements
Require Additional Steps: mole images
mHealth Asthma Study (syn8361748)
Demographics, your asthma, medical history, asthma medication, asthma history, about you, daily prompt, weekly prompt, EQ5D, milestone,
Other data: participant 3 digit zip
ElevateMS (syn21140362)
SleepHealth Public Researcher Portal (syn22264395)
Instructions for Reviewing and Approving mHealth Data Access Requests
Check the Data Access Submission Dashboard: https://www.synapse.org/#!ACTDataAccessSubmissionDashboard:default
Click the “Review Requests” button
For the Intended Data Use Statement, the requestor should have answered the following questions in 1-3 paragraphs:
What do you want to do?
Why are you doing it?
How do you want to do it?
Your Intended Data Use statement should include your overarching research goal, your main testable hypothesis (what you expect to determine with the proposed research), and how you will proceed. Your research may be strictly hypothesis-driven and seek to test several elements of one general hypothesis or you may be seeking to develop a critical tool or technique. No matter your planned approach, please keep your wording simple, relevant, and to the point.
Click either:
Approve: The user will automatically receive an email stating they now have access to the dataset
Reject: Fill in the reason for the rejection in the text field and click “send”
Data Requiring Additional Steps for Access
...
mPower
MDS-UPDRS Survey Data - the user will need to request a Synapse Token
Direct the user to the following page to request a token: https://www.synapse.org/#!Synapse:syn4993293/wiki/390373
PDQ-8 Survey data - the user will need to request a Synapse Token
Direct the user to the following page to request a token: https://www.synapse.org/#!Synapse:syn4993293/wiki/390374
Full instructions are available here: https://www.synapse.org/#!Synapse:syn4993293/wiki/247860
Mole Mapper
Mole Images - the user must also upload an IRB approval document to access the mole image data as part of their data access request
For more info: https://www.synapse.org/#!Synapse:syn5576734/wiki/391119
ElevateMS
User must become a Synapse Certified User with a validated user profile