You can control who has access your Synapse data to the data you contribute to Synapse in two ways. FirstFirst, you determine determine who can can access content by using sharing settings. Sharing settings are the list of people or teams Sharing settings enable you to list the individuals or teams who can view your project, and the permissions those groups have with respect to a dataset. You can use sharing settings to control authorize who can view, edit, download, or delete data.
In addition to sharing settings, the second way to control who can access your data is by applying Conditions conditions for Useuse. These restrictions define restrictions define how users users who have permission to download your data may use it. Conditions for Use use may include citation requirements, IRB approval , or other restrictions defined by the data contributor.
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Important: To download data, users must qualify for data access through both the sharing settings and through fulfilling any Conditions for Use on the dataset. |
To learn more about these features in Synapse, visit the Sharing Settings and Conditions for Use pages.
Data
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The combination of sharing settings and Conditions for Use determine who can access information in Synapse. For example, you can specify users who have permission to download a data file (as set by sharing settings), and you can also require that the file can only be used if certain Conditions of Use are met.
Access Tiers
All content in Synapse has sharing settings, but not all content has Conditions conditions for Useuse. Generally, data in Synapse can be categorized in four tiers based on its availability:
Private dataAccess Tier: visible Visible only to you or and other users whom you select in sharing settingsSharing Settings.
Controlled data: (also called controlled access data, or controlled use data) available to registered Access Tier: Available to registered, certified, or validated users that fulfill specific requirements for data access, such as submitting an Intended Data Use statement, obtaining IRB approval, agreeing to data use limitations, or other prerequisites.
Open data: Access Tier (also called open access data , or open use data) available : Available for all registered Synapse users without Conditions for Useuse limitations.
Public data: available Anonymous Access Tier: Available for anyone on the web without conditions Conditions for useUse.
Private Access Data
By default, when you create a new Project project in Synapse, the sharing settings are set to private and any data that you add will only be visible to you. Private access data also includes data that you share only with individual Synapse users or teams through sharing settings, but it is not widely sharedviewable to other Synapse users.
Controlled Access Data
Controlled access data is meant to be shared, however it generally data that contains sensitive information that could potentially harm individuals or groups if misused. Therefore, controlled data has additional protections for how it can be used, and these conditions you must meet certain conditions for use before you can gain access to it. These protections are defined by the data contributor and specify how the data can be used. Controlled access data can only be downloaded and used by authorized Synapse users, and it is not transferable unless explicitly specified otherwise. In other words, you cannot share controlled access data freely with other collaborators; each Synapse user wishing to use controlled access controlled data must individually agree request access to the Conditions for Use to access that data. To learn more about conditions for use and how to apply them to your data, see Conditions for useUse.
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Important: Controlled access data may not be redistributed. |
Examples of controlled access data include one or more of the following:
Data with minimal risks at risk of re-identifying research participants
Genetic sequence or genotype data from living individuals
Data from “vulnerable” populations as defined using OHRP guidelines
Data generated with restrictions or requirements for use as outlined in informed consents or legal agreements
Open Access Data
Unlike controlled access data, open access data does not require Conditions for Uselimitations on its use. Open access data is subject to general terms and conditions as specified in the Synapse /wiki/spaces/DOCS/pages/2004255236, and data users must have a registered Synapse account to download it. Typically, open access data include:
Data from model organisms, species, or strains
Non-biological data, like data used for the calibration of instruments
Human data that are:
Publicly available elsewhere
De-identified and non-sensitive, with no known sharing or use restrictions
Self-contributed and unambiguously consented for open data sharing and use
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Anonymous Access Data
Public Anonymous access data is similar to open data, except it is available for anyone on the web to view and download, with or without a registered Synapse account. Anonymous access data could be:
Downloadable wiki content, such as newsletters or announcements of data releases
Metadata about a file or dataset
Data available under a public domain
To make your open data publicavailable to anonymous users, contact the Synapse Access and Compliance Team (ACT) at act@synapse.org.
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