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  1. Become a certified Synapse user. This involves:

  2. Complete a data sharing plan (DSP). (Note: Some DSPs are tailored to specific funders, including CTF, GFF - GTI and VRINTAP, and DHART-SPORE.)

  3. Complete the data project intake form, which will collect information needed to set up a Synapse project and list it as a study on NF Data Portal, including the project title and abstract, lead investigators, who should have access to the project, and other details. (Note: you can attach your completed DSP from step #2 to this form, if you wish.)

  4. If your data are already generated and ready for public release, ensure that:

    • You have the appropriate permission and authority to do so (such as Institutional Review Board approval, informed consent, etc.). If you need to place conditions for use (access restrictions) on your data, please let us know (and be sure to detail them in your data sharing plan during step #2).

    • Your data are annotated with metadata. (Note: we may ask you to validate your metadata, and will provide information about this process at the time.)

    Once you’ve completed the steps above, send an email to nf-osi@sagebionetworks.org with the following information:

    • Your Synapse user ID

    • Your completed DSP

    • Project title and abstract (Note: this will appear on the NF Data Portal.)

    • Any additional project contributors/authors, if not detailed in DSP (Note: to access the data, they will need to create an account; to upload data, they will need to be certified – see step #1)

    • Any supplementary materials you want to include with the data, such as publications, code, etc.

    • If applicable, additional info from step #3 above

  5. Once we receive your information, we’ll review your submission, and (if approved) work with you to deposit your data in Synapse. Once all data is deposited and the embargo period ends, we’ll share your data on the NF Data Portal.

Data Sharing Frequently Asked Questions (FAQs)

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